Where to Start

By the time you’ve reached this page, you’ve seen the signs, sought out a doctor and are asking yourself, “now what?” Or maybe you’ve seen the signs but those around you are saying “it’s just a phase,” “boys develop more slowly than girls,” or “she’s got two older sisters talking for her.”

The American Academy of Pediatrics (AAP) recommends that all children be screened for developmental delays and disabilities during regular well-child doctor visits at 9, 18 and 24 months. Pediatricians should be completing the Checklist for Autism in Toddlers, which is filled out by the parents and a primary health care provider duing the 18 month developmental check-up. If you have not yet gotten a diagnosis and are not receiving support from your current pediatrician, check out our “state by state” resources below for a qualified doctor in your area.

Every family reacts differently to a diagnosis of autism. We have compiled a list of the most comprehensive resources to help you begin your journey with autism. The two most important tips we can give you are to educate yourself, you are your child’s most important advocate and seek out support. Whether it comes from your closest family and friends or a support group of other families in your area also living with autism, you can not win this battle alone. It’s OK and sometimes necessary to ask for help. We hope that help begins here, with the resources and knowledge you’ll need to move forward.

  • Getting Started

◦                     Autism Speaks- 100 Day Kit

◦                     TACA-New Parent Quick Start Guide

◦                     Autism Society of America

◦                     Easter Seals

◦                     Everyday Advocate

  • State by State Guides

◦                     Autism Speaks

◦                     Autism-PDD.net

◦                     Autism Society of America

  • Advocacy & Law

◦                     New insurance Laws by State

◦                     Wright’s Law

◦                     Federal Site: IDEA 2004

  • Insurance

◦                     Autism Health Insurance Project

◦                     Autism Votes

  • Inspiring Individuals with Autism

◦                     Temple Grandin, Ph.D.

◦                     Donna Williams

◦                     Carly Fleischmann

◦                     Jason McElwain

  • Medical/Life Topics

◦                     PICA

◦                     Autism & Seizures

  • The Teen Years

◦                     Teen Autism

◦                     Marsh Media Special Needs

◦                     Book List

  • Military Resources

◦                     ACT Today

◦                     Exceptional Family Member Program (EFMP)

  • Financial Support

◦                     Aid 4 Autistic Children Foundation

◦                     Lend4Health

  • Safety

◦                     Project AWAARE

◦                     Project Lifesaver

◦                     ASA Safe & Sound

◦                     ADT Child Safety Tips

General Support:

Babble’s List of  the Top 25 Spectrum Bloggers